I need to learn more about optic nerve hypoplasia. Who can help me with this?
There are a variety of helpful resources that are available to help you learn more about a medical diagnosis, such as optic nerve hypoplasia. Many online sources have both definitions and pictures of a variety of diagnoses. However, some of those are intended for persons who have a medical background, and may require further research to decipher the full meaning of the diagnosis. Sometimes, there are associations or organizations that are focused on one disability or group of related disabilities, such as Focus Families (www.focusfamilies.org) or the National Federation of the Blind (www.nfb.org), which are related to vision issues. Usually, they will have a site map on their home page that will allow you to look at “publications” or “Fact Sheets” or “FAQS”. These are typically brief, download-able information sheets that provide a basic explanation of a diagnosis. These publications usually provide a simple definition, which uses terms that are easier to understand.
The Missouri Developmental Disabilities Resource Center (MODDRC) can provide information on developmental disabilities, low incidence disabilities, and topics relating to developmental disabilities. You can contact the MODDRC by calling 800-444-0821 or visiting the MODDRC website at www.moddrc.org.
Michelle Reynolds, Director of the Missouri Developmental Disabilities Resource Center, University of Missouri-Kansas City
Last update: Wednesday, April 14, 2010